Resources
Professional Resources
The following resources can help clinicians and patients find more information on primary hyperoxaluria.
Mayo Clinic
Disease EducationSymptoms, causes, complications, diagnosis, treatment
NORD: National Organization for Rare Disorders
Disease EducationSigns and symptoms, causes, diagnosis, therapies
Orphanet
Disease Education- Epidemiology, diagnostic methods, genetic counseling, management
- Review articles and healthcare resources
Oxalosis & Hyperoxaluria Foundation
Disease Education- General understanding of hyperoxaluria
- Drug development pipeline for new therapies
Sign up for Patient Registry
OHF Facebook Page for Patient Support Group
Visit OHF
R.O.C.K. Society
Special Interest SocietyBasic mechanisms involved in human urinary stone formation
Visit R.O.C.K. Society
Registries
PH Registries
Registries exist for patients with primary hyperoxaluria, both in the United States and in Europe. For more information, see below:
Mayo Clinic*
hyperoxaluriacenter@mayo.edu
454 patients enrolled
OxalEurope
Visit OxalEurope.org
667 patients enrolled
*The Mayo Clinic Hyperoxaluria Center is supported by the Rare Diseases Clinical Research Network of the National Institutes of Health and by the Oxalosis & Hyperoxaluria Foundation.1