For US Healthcare Professionals

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Tools and resources

Actor portrayal

Tools and resources

Professional resources

Professional resources

The following resources can help clinicians and patients find more information on primary hyperoxaluria.

American Kidney Fund


Comprehensive programs of kidney health awareness, education, and prevention.


Visit American Kidney Fund

GARD: Genetic and Rare Diseases Information Center

Disease Education

Symptoms, causes, inheritance, diagnosis, treatment, prognosis


Visit GARD: PH type 1, type 2, type 3

Genetics Home Reference

Disease Education

Causes, inheritance pattern


Visit Genetics Home Reference

Mayo Clinic

Disease Education

Symptoms, causes, complications, diagnosis, treatment, patient registry


Visit Mayo Clinic

National Kidney Foundation

Voluntary Organization

Seeks to eliminate preventable kidney disease, accelerate innovation, and dismantle structural inequities in kidney care.


Visit National Kidney Foundation

NORD: National Organization for Rare Disorders

Disease Education

Signs and symptoms, causes, diagnosis, therapies


Visit NORD

Oxalosis & Hyperoxaluria Foundation

Disease Education

  • General understanding of hyperoxaluria 
  • Drug development pipeline for new therapies

Sign up for patient registry OHF

Facebook Page for Patient Support Group

Visit OHF

Rare Kidney Stone Consortium

Disease Education

For patients and physicians


Visit RKSC

Rare Renal

Patient Information

Etiology of PH and its effect on people


Visit Rare Renal

R.O.C.K. Society

Special Interest Society

Basic mechanisms involved in human urinary stone formation


Visit R.O.C.K. Society

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Stay up to date with the latest news and information about primary hyperoxaluria.

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  1. Mayo Clinic. Nephrology and hypertension: Hyperoxaluria Center overview. Accessed May 20, 2020.

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